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My Son has Asperger’s Syndrome – A Letter to Classmates’ Parents

submitted by lawilcox

Today I was welcomed into my son’s 3rd grade class (in public school) to read a picture book called “Understanding Sam and Asperger Syndrome” (by van Niekerk and Venter) and share some important information with the students. My husband and I requested this opportunity about a month ago because Ethan has been having some pretty huge challenges with classmates regarding friendship and social issues and we want to do everything possible to give Ethan (and his classmates) the tools they need to be successful in working through these complications. We are very open with Ethan about his diagnosis and the reason for many of his struggles and as a result he is also very open with others in his life so we felt this was a natural next step. During the pre-planning meeting with school staff held to discuss today’s visit, I was also told that we could send a letter home with the kids to help inform parents! I’ve been really excited as I have prepared for this opportunity and I absolutely loved spending 20 minutes with the children today.
For reasons not conveyed to me, the school staff chose not to send my full letter home with the students and decided instead to send an abbreviated version. While the abbreviated version listed some important information (and is of course a good start – for which I am appreciative), it didn’t convey a large portion of what we felt was significantly important...
With that stated, I hope that my letter in its entirety might help some of our readers here. It is printed below.


What is age appropriate?

submitted by lawilcox

‘Tis the season for parent/teacher conferences…at least in our school district. We spent the morning meeting with the teachers most involved in Ethan’s education this year. More than once today we discussed issues (regarding things we’re working on socially or organizationally) that I didn’t have a good feel for how Ethan’s neurotypical peers respond in the school setting. Two times I was surprised to hear he’s not the only boy in the class struggling with certain issues. While it was a nice and welcome surprise, it made me realize that I’m a little disconnected.


Friends Who “Get It”

submitted by lawilcox

Over the last several days, Kent Potter (Founder/Owner of AutismSpot), Craig Gibson (Assistant Editor of SensorySpot and Featured Blogger for AutismSpot) and I have been meeting to strategically plan some exciting new things for the future of AutismSpot and SensorySpot. Craig flew in from Philly to participate in face-to-face meetings and has been staying with us. (Ethan loves to have company and has officially welcomed Craig to the family; Ethan will be sad to see “Uncle Craig” leave tomorrow.) But, during Craig’s stay, I wanted to make sure he got to meet Kent’s wife, Angie, and their amazing kids (Sam, Luke and Olivia) so we had a cookout on Saturday with both families. We had a great time grillin’ and chillin’ with everyone, and to be quite honest, the evening was rather lively!
When the Potters were running behind due to Luke’s afternoon football game, Ethan was anxious. He couldn’t settle down until I texted Angie to find out where they were, if they were okay and be able to offer him an anticipated arrival time.


One More Step

submitted by KentPotter

Last week marked a milestone for our family. Sam is ten years old and in the fourth grade in public school. The last time Sam went to public school was when he participated in the PPCD Program (Preschool Program for Children with Disabilities). That was many years ago. Since that time we have been fortunate to find loving, nurturing private schools that could meet Sam's unique learning needs. We made the decision that it would be in Sam's best social interest to stay back in the fourth grade as he enters public school rather than move forward into fifth grade.


Helping Families with Autism during Funerals

submitted by lawilcox

One of my dear friends lost her mother to a long, painful battle with cancer this week. My friend has a nephew with Autism. When I asked if there was anything I could do to help the family, my friend asked for assistance helping to find someone to keep an eye on her nephew during the service. He and his family will be traveling from out of town. My sweet and thoughtful friend wants her brother and sister-in-law to be able to focus on the service even if their son feels the need to get up and explore, pace or simply move around.


Back to School

submitted by kidspeak

Where in the world did the summer go? Here in Texas, many schools start in only two weeks……insanity! With summer coming to an end, we are all busy getting our kiddos prepared for a new school year. We wanted to share links to our previous school-inspired blogs to help your family prepare your child for their new school, new classroom, new teacher or new friends. We wish everyone the best of luck and loads of fun for the 2011-2012 school year!
What Do I Tell the Other Parents?: www.autismspot.com/blog/What-Do-I-Tell-Other-Parents


Making Friends and Taking Names

submitted by lawilcox

I don’t even know where the phrase: “Kicking butt and taking names” came from, but occasionally it pops into my mind…even though the word “butt” is not commonly used in our household. However, I’ve watched Ethan do some pretty great things [socially] lately, and I have decided to alter the saying above to fit Ethan’s progress…he’s “Making friends and taking names…”


Friends with New Babies

submitted by lawilcox

If you’ve followed my blog for much time, you probably know that I’m very concerned about how changes to our environment in the past 50-100 years have affected the health and wellbeing of our entire society, but especially our children’s generation. With Autism Spectrum Disorders, asthma, life-threatening allergies, ADD/ADHD, diabetes and so much more at record numbers and on the rise in our littlest population, I’ve come to the conclusion that many variables must be to blame for these frightening increases.


When Mom Feels Lousy

submitted by lawilcox

Last night I went to bed around 9pm. That’s unusual for me – I’m a night owl and often work or watch TV after Ethan is asleep. But, I knew I needed to go to bed early because I felt lousy. Even though I’ve been gluten-free for well over a decade, there are times I get food (either from stores or restaurants) that has been cross-contaminated and it wreaks havoc on my body. Last night was one of those nights…
That also means that this morning was one of those mornings…I awoke at 7am still feeling the effects of a migraine,


Garage Sale Social Etiquette and Asperger’s Syndrome

submitted by lawilcox

Last week I posted HERE about some emotions I was encountering over having a Garage Sale and letting go of certain things that were Ethan’s as a baby; I’m pleased to report that I was able to effectively “let go” and I’m feeling good about my decision to purge. Many things we weren’t using will now be well-loved and well-used by other families! What I didn’t put much thought to last week (while I was swimming in my sea of emotion) were the social interactions that take place during a Garage Sale that Ethan had never before encountered…
When I stop to think about it, a Garage Sale is very different from the other social situations Ethan takes part in each week.


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