About pLDNetworks

books

12 Books We Love and Why

submitted by kidspeak

With so many books on autism on the market, it can be a challenge to figure out what’s worth purchasing and reading. There are books by celebrities, books by doctors, books by teachers, books by therapists, books by parents and so much more. I can’t tell you how many books I have on my shelf that I thought were going to be great but ended up being not so great. Way too many! We thought we would share our top 12 favorite books and why we love them so much. These books are great for everyone involved in the treatment of your child like parents, grandparents, teachers and therapists.


Stay Tuned For the New Year

submitted by kidspeak

KidSpeak is taking a break from blogging to spend the holidays with our families, to wrap up the rest of the year and prepare for the spring semester. We will be back in January with lots of new ideas and specific ways to work on social communication with your child.


I AM IN HERE - Author Interview Part 3

submitted by lawilcox
Photobucket


If you missed Part1 or Part 2 of my interview with Virgina G. Breen, I would encourage you to take a few minutes to read them before reading the final installment of our conversation about the book she co-wrote with her daughter, Elizabeth M. Bonker. I AM IN HERE: The Jouney of a Child with Autism Who Cannot Speak but Finds Her Voice is one of my favorite books about autism and hope! I want to extend my appreciation to Virgina & Elizabeth for working with me on this interview and for sharing their wonderful story with the world. ~Leigh
LAW: Finding joy is something you write about eloquently in the book. Raising a child with autism is not easy. It can be downright painful to watch our children suffer, and like in Elizabeth’s case, to watch them physically harm themselves. Would you share a little about how you work to find joy rather than dwelling in dark moments and depression?


I AM IN HERE - Author Interview Part 2

submitted by lawilcox

If you missed Part 1 of my interview with Virginia G. Breen last week, you can read it HERE. The book she wrote with her daughter, Elizabeth M. Bonker, I AM IN HERE is a must read! I hope you enjoy Part 2 of our interview below. ~Leigh
LAW: You state in the book that it isn’t enough to be a persistent parent when raising a child with autism…that instead you’ve found that being relentless is a must. I adore the 10 Rules you created for yourself. Can you share a little about that thought process so that other parents might create their own “rules” to live by?
VGB: I really appreciate how you understand that these are my Rules and how we each have to make our own. For me, it’s important to recognize upfront that being a parent of a special needs child is hard (Rule #1: Survive) but also full of joy (Rule #9: Celebrate Your Victories) if you make the right choices (Rule #10: Be a Victor, Not a Victim). I just tried to think about what was important to Elizabeth’s success and what it means to be a relentless parent including being upbeat (Rule #8) and keeping her dreams alive (Rule #7). Elizabeth says it more poetically:


I AM IN HERE – Book Review and Author Interview

submitted by lawilcox

With this post, I am thrilled to bring you a brief book review and Part 1 of an interview series with Virgina G. Breen who co-wrote I AM IN HERE: The Journey of a Child with Autism Who Cannot Speak but Finds Her Voice with her daughter Elizabeth M. Bonker.

When I started the book, I expected to be touched and inspired – I just didn’t expect to be absolutely blown away by the depth of Elizabeth’s profound poetry and Virginia’s expertly crafted story of loss, healing, hope and joy (enterwined amongst Elizabeth’s poems). I found myself deeply immersed in Virginia’s story and brought to tears many times by Elizabeth’s thoughts and words in black-and-white on paper; words she was unable to express before she learned to communicate through letter boards and later keyboarding.
For any parent of a child, teen or young adult with an Autism Spectrum Disorder struggling to find their voice, this book is an absolute must read! You’ll get a taste of Elizabeth’s profound poetry (and her after-thoughts about her poems in italics) below in my interview with Virginia, but you need to read the whole book…trust me.


My Son has Asperger’s Syndrome – A Letter to Classmates’ Parents

submitted by lawilcox

Today I was welcomed into my son’s 3rd grade class (in public school) to read a picture book called “Understanding Sam and Asperger Syndrome” (by van Niekerk and Venter) and share some important information with the students. My husband and I requested this opportunity about a month ago because Ethan has been having some pretty huge challenges with classmates regarding friendship and social issues and we want to do everything possible to give Ethan (and his classmates) the tools they need to be successful in working through these complications. We are very open with Ethan about his diagnosis and the reason for many of his struggles and as a result he is also very open with others in his life so we felt this was a natural next step. During the pre-planning meeting with school staff held to discuss today’s visit, I was also told that we could send a letter home with the kids to help inform parents! I’ve been really excited as I have prepared for this opportunity and I absolutely loved spending 20 minutes with the children today.
For reasons not conveyed to me, the school staff chose not to send my full letter home with the students and decided instead to send an abbreviated version. While the abbreviated version listed some important information (and is of course a good start – for which I am appreciative), it didn’t convey a large portion of what we felt was significantly important...
With that stated, I hope that my letter in its entirety might help some of our readers here. It is printed below.


Interview – Dr. Julie Buckley – Part 3

submitted by lawilcox

This is the final part of my interview series with Dr. Julie Buckley, author of Healing Our Autistic Children. (Click to read Part 1 and Part 2 of the series.) I want to express my sincere gratitude to Dr. Buckley for writing about and presenting on this topic in a way that has profoundly changed my perspective and approach to life. I hope that you will enjoy and take something powerful away from this interview series.
LAW: Part 2 of your book is dedicated to guiding parents through biomedical treatments with their child’s doctor; please share a little bit about the standard steps to biomedical recovery.
JB: The hard part about autism is that there is little that is “standard” about the approach we use. It is a highly individualized process – each child is unique in their genes, in their environmental exposures over the course of their short lives, and in the manifestations of the disease process. It takes a careful eye observing, and careful ears listening to a parent to find a starting point for working toward recovery.


Interview – Dr. Julie Buckley – Part 2

submitted by lawilcox

As I mentioned in Part 1 of my interview with Dr. Julie Buckley last week, I met Dr. Julie Buckley at the National Autism Association annual conference in the fall of 2010, but I was already familiar with her work. Her book, Healing Our Autistic Children, is one of my favorite books for parents raising children with ASD. In the book, Dr. Buckley shares very personal experiences (as a mother and Pediatrician) about how and why autism is a treatable medical disease. Also, the two times I’ve heard Dr. Buckley speak at NAA, I was greatly impacted. See my post about Caring for the Caregiver HERE inspired by Dr. Buckley’s presentations at NAA the past two years.
LAW: Please share a little about “The Big 3”: Inflammation, Oxidative Stress and Toxicity.
JB: When I teach families about the big three – toxicity, oxidative stress, and the chronic inflammatory response, I use the Venn Diagram approach that Sid Baker, MD and Liz Mumper, MD taught me. We know that autism, classically defined, is at the center of the intersecting circles, where behavior abnormalities, communication problems and social skills challenges intersect. But we also know that physically, autism lies at the intersection of three big problems – gut disease, immune dysregulation and methylation chemistry disturbances. It is these physical problems that give rise to the behavior/communication/social skills problems Leo Kanner observed. And even more fundamentally, it is the “Big 3” – toxicity, oxidative stress, and the chronic inflammatory response – that allow the physical things (the gut disease, the immune dysregulation, the methylation chemistry disruption) to get started, and then those physical things give rise to the behavior/social skills communication problems…it starts to feel a little bit like that old childhood song “I know an old lady who swallowed a fly…”


Interview – Dr. Julie Buckley – Part 1

submitted by lawilcox

Last fall I met Dr. Julie Buckley at the National Autism Association annual conference, but I was already familiar with her work. Her book, Healing Our Autistic Children: A Medical Plan for Restoring Your Child's Health, is one of my favorite books for parents who work tirelessly to navigate the challenging waters of raising children with ASD. In her book, Dr. Buckley shares very personal experiences (as a mother and Pediatrician) about how and why autism is a treatable medical disease. It is well-written, easy to read and filled with tremendous information which helped equip me to be a better mother and caregiver to Ethan. Also, the two times I’ve heard Dr. Buckley speak at NAA, I was greatly impacted. See my most recent post about Caring for the Caregiver HERE. I hope you’ll enjoy Part 1 of our interview series. Let us know what you think!
LAW: Dr. Buckley, Please tell us a little about yourself and your personal and professional “interests” in Autism Spectrum Disorders.
JB: My professional interest in Autism developed as a direct result of my personal interest in Autism. My personal interest in Autism developed involuntarily and very abruptly when my daughter regressed profoundly at the age of four.


Surprise! Book Recommendation: Mockingbird

submitted by lawilcox

Every now and then I appreciate a good surprise. Not a “Surprise! Happy Birthday!” with-20-of-your-closest-friends kind of surprise…I prefer more simple, organic surprises. This week I read a compelling chapter book written from the perspective of a girl with Asperger’s Syndrome. Mockingbird by Kathryn Erskine is a refreshingly well-written and powerful award-winning book that caught me by surprise, simply because I had no idea it existed.
As a children’s book author I like to stay dialed in to what is happening in the children’s literature market, especially when it pertains to a topic so near and dear to my heart, but life has been so hectic over the past year that I haven’t stayed as closely tuned-in to the market as I like. So until I came across the title (and blurb) in Ethan’s Scholastic Book Order earlier this month, I didn’t know that this tremendous book…this character…this story...were all waiting patiently out there for me to find them. I thoroughly enjoyed reading Mockingbird.


Syndicate content