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Guest Blog – Chronic Cerebro-Spinal Venous Insufficiency & Autism

submitted by lawilcox

Keeping up with cutting-edge science and research in relation to autism and Autism Spectrum Disorders can be overwhelming and exhausting – there are so many different researchers doing great work and publishing in a variety of journals; it is a lot to keep up with. However, one of our newest guest bloggers, Nicole Wallace, has a gift for following the newest autism/biomedical news, breaking it down into understandable pieces and sharing it with us! Nicole writes below about CCSVI or “chronic cerebro-spinal venous insufficiency” as it relates to children with ASD. Her last post about Stem Cell Treatment for Autism was also an interesting and detailed post worth reading. We’d love to hear if you’ve considered or utilized stem cell or CCSVI therapies for your child in the comments section below. Enjoy!
Chronic Cerebro-Spinal Venous Insufficiency & Autism
By Nicole Wallace
The hypothesis of vascular abnormalities in multiple sclerosis has been around for years but only recently has a doctor in Italy begun taking the research to a new level of actually testing and treating MS patients. Paulo Zamboni M.D., a vascular surgeon from Sardinia, Italy, coined the term "chronic cerebro-spinal venous insufficiency" or CCSVI in MS patients. CCSVI is a narrowing of the jugular or vertebral veins that restricts the normal outflow of deoxygenated blood from the brain and spinal cord to the heart. CCSVI can result in iron deposits in the brain which can lead to autoimmunity.
To date the majority of the studies and information about CCSVI are linked to multiple sclerosis. But Dietrich Klinghardt M.D. PhD, and others have suggested that CCSVI is likely an issue in most children with autism as well.


When It Rains, It Pours

submitted by lawilcox

Such a cliché – “When it rains, it pours!” But, sometimes there is no better way to describe life.
We’ve had a lot going on lately and have had a lot of stress in our lives as a result. For the most part I’m good with stress; I can typically roll with the punches, maintain a positive attitude and keep marching forward - usually with a smile. The bottom line is that I know everything is cyclical and that this, too, shall pass. In the past month, though, amidst the rain, it began to pour in the Wilcox household and instead of singing and dancing in the rain – I’m admittedly sloshing a bit, mindfully trying to hum my way through it.
Most impactful, my mother-in-law passed away two days after Christmas. While it wasn’t a total surprise as we watched her health slowly decline over the past few years, it wasn’t necessarily “expected” either and it has been devastating on many levels.


Guest Blog – Touch, See, Feel, Move

submitted by lawilcox

This information-packed guest blog is the second in a series from my friend and colleague Dan E. Burns. Dan is absolutely passionate about asking tough questions and finding answers related to young adults living with autism and their families. Dan’s last guest post Funding Autism for Life addressed options families have for supporting and caring for individuals with autism when they age out of public school. This excellent post from Dan explores The Brookwood Community, the brain in relation to movement and exercise and much, much more. Enjoy!
Touch, See, Feel, Move: The Brookwood Community in Texas and the Autism Epidemic
By Dan E. Burns
“We don’t just believe in miracles,” my guide told me, “we rely on them.” White-haired and in her eighties now, striding ahead of me cell phone in hand, my guide, called “Me-Maw” by some of the residents who to flock around her, prefers to remain anonymous. “I didn’t build this wonderful place,” she explained. “It’s God’s doing.”
She opened door after door as we made our way through clusters of busy citizens in the ceramic workshops, gym, natatorium, and clinic to a fine, on-campus restaurant near the gift shop and gardens of The Brookwood Community, a 495-acre residential/educational village designed to enhance the lives of adults with disabilities.


Guest Blog – Team Autism

submitted by juliehornok

Team Autism
By Julie Hornok
Being extremely independent has always been one of my best traits, and yet at the same time, one of my worst traits. In my childhood, I tried every type of activity imaginable, but I never found a team that was worth staying on.
I tried soccer, but the thought of getting kicked in the shin wasn’t worth the lack of thrill I felt when someone else kicked a ball through a goal. I tried softball, but somehow standing in the outfield and ending up covered in fire ants took away any joy away from the fact that one of my teammates could slide into home plate. Acting was worth a try, but it turned out to be quite annoying when I said my one line, “I like porridge too,” and then had to sit around watching others talk for another hour and a half. Of course, drill team was sometimes fun, but even being with my friends at something they were good at wasn’t worth listening to the screechy voice of the drill team instructor.
Even with all my childhood lack of interest, I somehow grew up with a strong “can do” attitude. I was a firm believer that with enough will power and hard work, I could overcome anything. The power of positive thinking could and would beat the odds of whatever was put in front of me. And then I met Autism.


Including Children with Autism in Typical Educational Settings: A Story of Success!

submitted by lawilcox

Happy New Year! Over the past 12 months, Craig Gibson and I have had several discussions about education – especially as it pertains to individuals with special needs – and how educators are prepared and trained to be successful in a diverse classroom setting. With Craig’s background (personal: growing up with a learning disability and now raising a child with a disability and professional: working as seasoned educator and evaluator) and mine (professional: working as a teacher/reading specialist and personal: raising a child with an Autism Spectrum Disorder), we’ve found we’re both passionate about how important it is to set the stage appropriately, as early as possible, for children with learning differences. As we’ve discussed these beliefs and ideas, the idea for this “Feature Article” – a story about a new preschool teacher and a student with autism – was born…a piece we would work on together, to share some ideas, thoughts and beliefs about how even a teacher lacking the proper tools could learn, grow and make a positive difference in a child’s life. Craig and I decided it would be fun to kick off 2012 with our first feature article! Let us know what you think…


Favorite Posts of 2011 – One More Step, by Kent Potter

submitted by lawilcox

As we prepare to say goodbye to 2011 this week, we at AutismSpot wanted to re-share a few of our favorite blog posts from the year as a means of recollection. As I carefully sifted through AutismSpot’s Founder – Kent Potter’s – posts, I was touched again by so many of his pieces. Kent has a beautiful way with words and often tackles subjects regarding autism and Asperger’s Syndrome which beg to be addressed, but he does it with candid grace. Kent and Angie Potter (and their amazing family) inspire me in many ways but I can never thank them enough for sharing their insights (and those of others) with everyone at AutismSpot over the years. I am so thankful to call Kent both colleague and friend. It is my pleasure to repost Kent Potter’s post entitled “One More Step” which originally ran back in September. Thanks for the powerful reminder and lovely illustration that small wins count BIG, Kent! I couldn’t agree more.


9-year-old Kentucky Boy with Autism Stuffed in Duffel Bag at School

Via Fox News: "A 9-year-old autistic boy who misbehaved at school was stuffed into a duffel bag and the drawstring pulled tight, according to his mother, who said she found him wiggling inside as a teacher's aide stood by." Further, according to the story, "In Kentucky, there are no laws on using restraint or seclusion in public schools, according to documents on the state Department of Education's website." Read more HERE.

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Fri, 12/23/2011 - 12:30

New Seclusion & Restraint Bill Introduced

Via PRNewswire - Last Friday Senator Bill Harkin (D-IA) introduced a new federal bill - The Keeping All Students Safe Act - to protect school children from dangerous, sometimes deadly, restraint and seclusion practices and techniques. From the press release issued by the National Autism Association: "It's estimated that over the last five years, more than 200 students, many with disabilities, have died due to seclusion and restraints being used in schools."

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Thu, 12/22/2011 - 12:13

Guest Blog – The Magic of Christmas and Failed Expectations

submitted by juliehornok

The Magic of Christmas and Failed Expectations
By Julie Hornok
Christmas is supposed to be magical. When we are little, we spend hours dreaming about the wonderful gifts waiting for us on Christmas morning. Our wish list is long, and our hopes are high. We even convince ourselves that an old man with a big fat belly flies around and gives every good little boy and girl in the whole world presents all in one night. We can’t sleep the night before, and we are giddy with anticipation for the morning to come!
Somehow as we get older the magic in life seems to slowly disappear. We become so focused on fixing our children with autism that we don’t have the time or energy to even think about magic. Magic to us is finding the money to pay for a new food dehydrator for a new diet for our kids or pencil grips to help our child’s handwriting!
So, how does someone find the magic in their adult life? Some say we re-live it through our children. But what if my child with autism has no ability to understand all the things I love about Christmas? What if she flat-out refuses to participate in all the traditions that bring me joy?


Diagnosis Anniversary Revisited

submitted by lawilcox

Last year I wrote about what I refer to as our diagnosis anniversary and all of the emotions it brings with it each year for me…right around Christmastime. This year, marks 5 years since our lives changed drastically - when we entered the community caring for and serving children and individuals with ASD; our 5-year diagnosis anniversary.
Ethan doesn’t really know I have these bitter-sweet moments every December and I plan to keep it that way, at least for now…He LOVES the joys Christmas brings and I adore watching the joy unfold around him. Spending time with our extended family makes him happy from the tips of his toes to the ends of the hairs on his head. He now shops for our family members – spending his own money – and helps wrap each gift. Ethan helped prepare gifts for the teachers and administrators he adores at his school. He understands why our family celebrates with gift giving and loves to hear the story of the Three Wise Men bringing gifts from afar to the Baby Jesus. Someday maybe I’ll share with him about my conflicting emotions at this time of year, but only when he’s an adult, and only if he is able to comprehend and filter such information to benefit his life and outlook; otherwise – I’ll keep it to myself.


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