I made a blog entry about it but I am really desperate for answers. I need to know if anyone has ever gone through this or if you have an autistic child who has also... it would really help to get some info on how to handle it.
I've been trying to find information on getting hospital accommodations. I mean for someone like me, I fear hospitals to an extreme, so much that I would probably rather die than set foot inside of one. It becomes a bigger challenge for my mom because she really doesn't understand me that well. My dad is handicapped because of tendinitis and doesn't like being in the hospital with me either.
I want to have accommodations so that they understand that I have trouble with expressing myself as well as emotional wise too. I am unable to explain things in highly anxious situations and it becomes a big issue. I get panicky and at times I meltdown under pressure and frustration. I just don't enjoy being poked and prodded at and then having them do other things I can't even prepare myself for. I have even been known to walk out of the hospital due to fear because I just didn't want to be there.
I have trouble dealing with what is to come. I hate change and anything that is unexpected. What is even more of a challenge is having the mind of an eleven year old girl. It is challenging because people see me as a 22 year old and don't realize how I function. I just want to be understood and treated as a child so I don't end up going into a state of panic and distress.
Another thing is being out in a waiting room with high levels of sensory input and inability to filter background noises... this is another issue and not to mention people throwing up... it would be nice if I could be in a room away from this where I wasn't around so many people having to wait.
The problem I face is that I don't 'look' disabled and you know what? If I don't 'look' disabled then they hardly even take me seriously. I hate it and half the time I give up the chance to go to a hospital... but something is going to happen where I will need to and then they will have a problem because with my disabilities, there will be a serious challenge.
It would be hard considering one of those medic alert bracelets or even a card because these are special needs. There are things that need to be planned out and understood so I don't go into meltdown mode.