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Guest Blog – Professional Acting with Asperger’s Syndrome: Part 4

submitted by lawilcox

Last fall, my friend Jennifer Dodson started a fantastic series for us about how acting and drama have positively influenced her son with Asperger’s Syndrome. This final entry is packed with great information about programs and even a book recommendation for utilizing drama and acting in the lives of children with autism. If you missed the first few posts in the series, I encourage you to read Part 1, Part 2 and Part 3 as well. My sincere thanks, again, to Jennifer for taking the time and effort to pen this encouraging and informative series for us! Enjoy, ~Leigh
Professional Acting with Asperger’s Syndrome: Part 4
By Jennifer Dodson
The journey for our son who is a professional actor with Asperger Syndrome has been very rewarding. We have watched our son's social skills blossom and his self-confidence soar. For our son, acting has opened up his world in ways we didn't know were possible.


My Son has Asperger’s Syndrome – A Letter to Classmates’ Parents

submitted by lawilcox

Today I was welcomed into my son’s 3rd grade class (in public school) to read a picture book called “Understanding Sam and Asperger Syndrome” (by van Niekerk and Venter) and share some important information with the students. My husband and I requested this opportunity about a month ago because Ethan has been having some pretty huge challenges with classmates regarding friendship and social issues and we want to do everything possible to give Ethan (and his classmates) the tools they need to be successful in working through these complications. We are very open with Ethan about his diagnosis and the reason for many of his struggles and as a result he is also very open with others in his life so we felt this was a natural next step. During the pre-planning meeting with school staff held to discuss today’s visit, I was also told that we could send a letter home with the kids to help inform parents! I’ve been really excited as I have prepared for this opportunity and I absolutely loved spending 20 minutes with the children today.
For reasons not conveyed to me, the school staff chose not to send my full letter home with the students and decided instead to send an abbreviated version. While the abbreviated version listed some important information (and is of course a good start – for which I am appreciative), it didn’t convey a large portion of what we felt was significantly important...
With that stated, I hope that my letter in its entirety might help some of our readers here. It is printed below.


Guest Blog – Chronic Cerebro-Spinal Venous Insufficiency & Autism

submitted by lawilcox

Keeping up with cutting-edge science and research in relation to autism and Autism Spectrum Disorders can be overwhelming and exhausting – there are so many different researchers doing great work and publishing in a variety of journals; it is a lot to keep up with. However, one of our newest guest bloggers, Nicole Wallace, has a gift for following the newest autism/biomedical news, breaking it down into understandable pieces and sharing it with us! Nicole writes below about CCSVI or “chronic cerebro-spinal venous insufficiency” as it relates to children with ASD. Her last post about Stem Cell Treatment for Autism was also an interesting and detailed post worth reading. We’d love to hear if you’ve considered or utilized stem cell or CCSVI therapies for your child in the comments section below. Enjoy!
Chronic Cerebro-Spinal Venous Insufficiency & Autism
By Nicole Wallace
The hypothesis of vascular abnormalities in multiple sclerosis has been around for years but only recently has a doctor in Italy begun taking the research to a new level of actually testing and treating MS patients. Paulo Zamboni M.D., a vascular surgeon from Sardinia, Italy, coined the term "chronic cerebro-spinal venous insufficiency" or CCSVI in MS patients. CCSVI is a narrowing of the jugular or vertebral veins that restricts the normal outflow of deoxygenated blood from the brain and spinal cord to the heart. CCSVI can result in iron deposits in the brain which can lead to autoimmunity.
To date the majority of the studies and information about CCSVI are linked to multiple sclerosis. But Dietrich Klinghardt M.D. PhD, and others have suggested that CCSVI is likely an issue in most children with autism as well.


When It Rains, It Pours

submitted by lawilcox

Such a cliché – “When it rains, it pours!” But, sometimes there is no better way to describe life.
We’ve had a lot going on lately and have had a lot of stress in our lives as a result. For the most part I’m good with stress; I can typically roll with the punches, maintain a positive attitude and keep marching forward - usually with a smile. The bottom line is that I know everything is cyclical and that this, too, shall pass. In the past month, though, amidst the rain, it began to pour in the Wilcox household and instead of singing and dancing in the rain – I’m admittedly sloshing a bit, mindfully trying to hum my way through it.
Most impactful, my mother-in-law passed away two days after Christmas. While it wasn’t a total surprise as we watched her health slowly decline over the past few years, it wasn’t necessarily “expected” either and it has been devastating on many levels.


Guest Blog – Touch, See, Feel, Move

submitted by lawilcox

This information-packed guest blog is the second in a series from my friend and colleague Dan E. Burns. Dan is absolutely passionate about asking tough questions and finding answers related to young adults living with autism and their families. Dan’s last guest post Funding Autism for Life addressed options families have for supporting and caring for individuals with autism when they age out of public school. This excellent post from Dan explores The Brookwood Community, the brain in relation to movement and exercise and much, much more. Enjoy!
Touch, See, Feel, Move: The Brookwood Community in Texas and the Autism Epidemic
By Dan E. Burns
“We don’t just believe in miracles,” my guide told me, “we rely on them.” White-haired and in her eighties now, striding ahead of me cell phone in hand, my guide, called “Me-Maw” by some of the residents who to flock around her, prefers to remain anonymous. “I didn’t build this wonderful place,” she explained. “It’s God’s doing.”
She opened door after door as we made our way through clusters of busy citizens in the ceramic workshops, gym, natatorium, and clinic to a fine, on-campus restaurant near the gift shop and gardens of The Brookwood Community, a 495-acre residential/educational village designed to enhance the lives of adults with disabilities.


Including Children with Autism in Typical Educational Settings: A Story of Success!

submitted by lawilcox

Happy New Year! Over the past 12 months, Craig Gibson and I have had several discussions about education – especially as it pertains to individuals with special needs – and how educators are prepared and trained to be successful in a diverse classroom setting. With Craig’s background (personal: growing up with a learning disability and now raising a child with a disability and professional: working as seasoned educator and evaluator) and mine (professional: working as a teacher/reading specialist and personal: raising a child with an Autism Spectrum Disorder), we’ve found we’re both passionate about how important it is to set the stage appropriately, as early as possible, for children with learning differences. As we’ve discussed these beliefs and ideas, the idea for this “Feature Article” – a story about a new preschool teacher and a student with autism – was born…a piece we would work on together, to share some ideas, thoughts and beliefs about how even a teacher lacking the proper tools could learn, grow and make a positive difference in a child’s life. Craig and I decided it would be fun to kick off 2012 with our first feature article! Let us know what you think…


Favorite Posts of 2011 – One More Step, by Kent Potter

submitted by lawilcox

As we prepare to say goodbye to 2011 this week, we at AutismSpot wanted to re-share a few of our favorite blog posts from the year as a means of recollection. As I carefully sifted through AutismSpot’s Founder – Kent Potter’s – posts, I was touched again by so many of his pieces. Kent has a beautiful way with words and often tackles subjects regarding autism and Asperger’s Syndrome which beg to be addressed, but he does it with candid grace. Kent and Angie Potter (and their amazing family) inspire me in many ways but I can never thank them enough for sharing their insights (and those of others) with everyone at AutismSpot over the years. I am so thankful to call Kent both colleague and friend. It is my pleasure to repost Kent Potter’s post entitled “One More Step” which originally ran back in September. Thanks for the powerful reminder and lovely illustration that small wins count BIG, Kent! I couldn’t agree more.


Diagnosis Anniversary Revisited

submitted by lawilcox

Last year I wrote about what I refer to as our diagnosis anniversary and all of the emotions it brings with it each year for me…right around Christmastime. This year, marks 5 years since our lives changed drastically - when we entered the community caring for and serving children and individuals with ASD; our 5-year diagnosis anniversary.
Ethan doesn’t really know I have these bitter-sweet moments every December and I plan to keep it that way, at least for now…He LOVES the joys Christmas brings and I adore watching the joy unfold around him. Spending time with our extended family makes him happy from the tips of his toes to the ends of the hairs on his head. He now shops for our family members – spending his own money – and helps wrap each gift. Ethan helped prepare gifts for the teachers and administrators he adores at his school. He understands why our family celebrates with gift giving and loves to hear the story of the Three Wise Men bringing gifts from afar to the Baby Jesus. Someday maybe I’ll share with him about my conflicting emotions at this time of year, but only when he’s an adult, and only if he is able to comprehend and filter such information to benefit his life and outlook; otherwise – I’ll keep it to myself.


Guest Blog: Helping the Medicine Go Down

submitted by lawilcox

This guest blog post, about how compounding pharmacies can be a tremendous resource for families raising children with ASD, comes from Ashley Dick, who is a practicing compounding pharmacist and co-owner of PharmaCare Compounding Solutions in Tennessee.
Helping the Medicine Go Down: Addressing the special needs of ASD patients
By Ashley Dick, PharmD
For the parents of a child with an autism spectrum disorder (ASD), the many difficulties that come with caring for their child can cause significant stress and frustration, to the point of being overwhelming. Often amplifying these feelings is the fact that the very characteristics of the condition make it exceedingly difficult to treat the symptoms or simply help the child to feel better. Because of the extreme sensory and dietary issues experienced by many ASD patients, traditional forms of medication or nutritional supplements are either difficult or impossible to administer, but there is a solution through pharmacy compounding.


Guest Blog – Professional Acting with Asperger’s Syndrome: Part 3

submitted by lawilcox

If you missed Part 1 and Part 2 of this guest blog series by Jennifer Dodson about her son, Major, (a handsome and smart little boy with Asperger’s Syndrome) who pursuing a professional acting career, I encourage you to click over and take a look.
Professional Acting with Asperger’s Syndrome: Part 3
By Jennifer Dodson
I often share Major’s diagnosis and personality quirks with members of the Production Crew and fellow cast members. I do this AFTER he has booked a job and only when it seems appropriate or necessary to do so. He is different and there are better ways to speak to Major than others. For example, when a Director understands that Major is very literal and there is mostly black and white and not a lot of grey in his interpretations, they can direct him better. It seems that most adults like to give weighted options to children. For example, if you say, “Major if you would like to try it this way…” Major will most likely tell you “no.” After all, you did just give him the option to decide if he wanted to do it that way!


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