Each school year I start with a spirit of positive anticipation and ultimately by the end of the first nine weeks I am reminded of how incredibly disconnected and broken the public education system is as a whole in teaching children with autism and special needs. I would like to think of myself as an educated, proactive, supportive parent who, on a regular basis demonstrates her appreciation for the educators who have chosen to work in special education. This school year started as many have in the past with the typical transition period of having a new teacher in Jacob's classroom. I have learned over the years that with any business, teaching positions can only be filled based on the number of applicants that apply and that there is little control or ability to predict who will do so. What is a known constant is that school districts do have the ability to ensure that these individuals have appropriate training and that there is carryover of critical information specific to the implementation of each Childs individual IEP and BIP. I don't think many people would argue this statement. So why is it that each year so many families experience such discord and frustration as their children are put through an emotional blender as new professionals are given charge of their entire world as it pertains to the majority of their waking hours, only to be left without a compass or gauge to assist them in what tools, techniques and strategies have been used in years past that showed to be positive or negative in teaching each individual child.
I'm sure you can see where this is headed... This year started off rough once again, it clearly was due to the lack of carry over and preparation of the campus my son attends. His teacher is an enthusiastic positive individual who by all evidence has a heart for children with special needs and a desire to make a difference, however the campus and district failed him and my son once again by not providing the most basic of tools, training and supports in order to succeed. We experienced the ultimate in fall out and collateral damage as Jacob experienced the traumatic situation of being restrained not because it was warranted but because school staff lacked the appropriate analytic training needed when working with individuals with communication delays. I knew something was amiss as Jacob's language began to decrease and abrupt noises and response to everyday questions and events increased within the first four weeks of school. The phone call I received informing me that restraints had been used was upsetting but when all the information was brought to the table on the events that transpired, leaving bruises on my child's arms, legs and back, it was heart breaking to know that the entire situation could have and should have been avoided. I am amazed that I, a single mom of three continuously emerge as having a greater depth of understanding and training in teaching methods, data collection and evaluation processes that can clearly guide what should and should not be done when teaching a child with autism or other developmental delays.
After two ARD meetings of which each were four hours and then some, once again we have lost valuable teaching time as the teacher has been forced to learn hands on at Jacob's expense. I am blown away with this for the shear reason that if the district would have had a simple question and answer survey as to what basic teaching methods and behavioral strategies the teacher was familiar with they would have known what gaps existed and would have been able to ensure that these basic needs were addressed prior to the first day of school. What might these special teaching stratagies be that I am speaking of...errorless training, delivery of prompts, what is a prompt, how to fade a prompt, identify primary objectives, the ability to identify what is an actual reinforcer to the child (not what the adult considers to be reinforcing), how to effectively use token ecconomys, how to recognize opportunittie to positively reinforce the child and last but not least, how to take data and interpret it. I have to admit I am becoming more cynical with each year considering the very same scenario occurred last year to Jacob. What is bewildering is that after events had transpired last year the teacher did receive appropriate training although much of it was from me, but there was NEVER the need for any restraints to be used again. My question to you and those in a position of power within the world of education is how can this be acceptable not once but twice to say the least? I would think that in any other business, especially within the private sector that a plan of action would be made to remedy the short comings rather quickly in order to avoid further fall out.
So, for all the powers that be in politics and education across the world, in each country and state here is what is needed and should be done from a simple approach of checks and balances that any business would consider to be essential in effectively achieving goals and outlined targets.
1. Universal form that follows the child throughout the delivery of education services that specifically notes the IEP goal, what approach, method or strategies were used/tried and its effectiveness.
2. Universal form that follows the child throughout the delivery of interventions meant to address maladaptive behaviors, showing what was effective in increasing desired behaviors as well as decreasing undesired.
3. A decision tree that provides an outline that all education professionals could defer to and would be used when the acquisition of a concept or skill is delayed or non-existent when teaching academic or language goals. Personally it is unacceptable that procedures or teaching strategies are used for nine weeks to a year at a time that do not result in statistical, meaningful gains. In a private business where the bottom line means you sink, swim or fold this approach would not be acceptable, so why is it allowed when teaching our most precious resources, our children.
There is so much more to this story and it is far from over... I have chosen to attempt the lofty goal of radically impacting the way my school district does business in a manner that Jacob, his teacher, school district and other children will all emerge as winners. The ball is in their court for the moment as they are being given the opportunity to do the right thing morally and ethically. My greatest frustration is that until these core principals are applied and incorporated into the public education system many more children will continue to experience the peat and repeat effect. The stakes are high as each year these children lose valuable teaching opportunities. Lost teaching opportunities translate into low skill acquisition that in the end determines how well the child can function independently as an adult. Low functioning adult’s equal expensive long term care programs that will be provide by state and funded by tax payers.
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Comments
Why does school yr. start at ground zero?
We have been through the same situation. I wish you the best in being able to implement the chgs. You have great ideas. Unfortunately, some school systems will tell you what you want to hear, but will not do what they say they will. That has been our experience.
Our son's IEP was not followed. His teacher did not read it or any of the notes I would send (for her benefit!) explaining things about him and what would work. The things that she did read, like him needing a keyboard to use instead of doing handwriting, she disregarded and decided on her own that he needed to learn to write like everyone else. She didn't think it was fair to the other kids for him to have one and them not. She thought he could/should be made to do as all the other kids did and should not have certain "privileges".
He is very high-functioning and they are SO uneducated about autism and sensory issues that they thought he was just a spoiled brat and treated him accordingly. Even with medical records and detailed info from me, and an IEP, they only gave lipservice. The first 3 months of kindergarten were a nightmare. Finally, we got him moved into another class w/another teacher who listened to me and implemented the IEP and was wonderful. Sadly, first grade was just as you said, no one had a clue. It was as if they had no info about him at all. His teacher used his personal parapro for other kids b/c she thought he didn't need one. He was suppose to be getting speech twice a week and also attend 5 gifted segments per week. From the beginning of school on August 1st through the day I pulled him out December 9th he never went to the gifted class. The gifted teacher sent worksheets (woo!) to his teacher to pass out to him. He never went to speech and his classroom teacher never followed up on why the speech teacher wasn't pulling him out. The speech teacher attended each IEP mtg. and pretended that he was getting speech. His regular teacher sat right there and didn't say a word even though she knew he had not received any speech the entire year. The speech teacher later got fired for not doing her job, but in the meantime, my child (and others) did without crucial speech therapy that was needed.
After the SECOND episode of my 6 yr. old (decision making capability of 3-4 yr. old) being found alone in the parking lot, I pulled him out and never took him back. We live in a small town and have no resources/schools for kids like him. He also has Hyperlexia and is intelligent, but it often seems to work against him b/c people don't understand that his reasoning and understanding are not at his age level and assume that we are just bad parents who haven't taught him how to behave. We did attend one more IEP mtg. at the beginning of January (after the 2nd parking lot incident)and the attitude from the team was just as before. They used legalese and said all the right things (they were afraid I was going to file a lawsuit) but I knew nothing would change. The school special ed coordinator had a haughty attitude. The county special ed coordinator said we would get compensatory speech services as soon as they hired a new therapist. She stated that they would call me. I never heard from them. I called to inquire after 2 or 3 months and she put me off until the summer b/c they were so busy. She said she would call me to set up a time. To this day, I've never heard a word from any of them. My sister who is a kindergarten teacher in another county (with a doctorate degree) went with us to the last mtg. She was astonished at the attitude and said if it were her child she not only would pull him out as I had done, but she would also file a lawsuit. I probably should have, but I have another son in the system in a higher grade and I was afraid they would take it out on him. As I said, we live in a small town. It's just so frustrating for parents and so sad for these kids because getting the therapy is crucial for them. The younger, the better. Our son couldn't "communicate" at three yrs. old even though he could read. He couldn't tell us what was wrong, where he hurt, what he needed/wanted. He was echolalic and used phrases he had heard which made him sound fine, but the comprehension wasn't there. Now he is 8 and never stops talking. He has made leaps and bounds. We stopped private speech therapy, but continue OT. We homeschool (have no choice) and it works great for him. We use an interactive computer program which is easier for him. (visual and keyboard) I say all this to say that sometimes a parent knows what is best for their child and when they are not able to get the "system" to give their child the FAPE they are entitled to, they must take matters into their on hands. I applaud you for taking on the system and hope the changes take place not only for your child's benefit, but also for others who will benefit from your courage to fight.
I am glad I stumbled upon this website. I enjoyed your article and like you, I have made it a point to learn and feel that I know more than the teachers here. The worst part is that the info is there and so easily attainable, but my experience has been that the teachers do not want to go the extra mile to learn it or even acknowledge that autism is very real. It's easy to recognize a blind child, a deaf child, a Down's Syndrome child, but most children with ASD look normal.
a new teacher
Dear Mika,
You seem like a lovely loving mother who wants the best for your child. Perhaps you should require an Educational / Teaching Assistant for your child to guarantee individualized support for your child.
Here is the reality of the current education system. Nobody wants to pay for extra teachers. Decisions to hire are often made 2 days to a week before the job starts as numbers of students warrent extra staff. We teachers can easily be teaching upto 100 new students and meeting around 50 new staff in a new building, a long with new curriculum and textbooks in result of our continual educational curriculum reform. The first few days are spend finding out: where is the bathroom, how the school works, where to go to sign out A/V, who is responsbile for what, and learning everyone's name. Your laundry list of things that you want done for your individual child is a full time job in itself. The very nature of austic children makes them reluctant to change. Teachers, conversely to your opinon, are well trained and knowledgeable, but there is a period of getting aquanted in any job and teachers hit the ground running. If you want a difference for your child, get a EA/TA whose sole responsibility is your child, and moves with your child year to year. So that your kid won't act strange; and there is someone in the classroom to serve as a voice for your child, and reinterpret the curriculum, while the teacher is dealing with upto 35 other children. (Higher numbers happen when classes are merged for specific subjects.)
The system is not perfect. We would all like to have steady jobs and watch children grow up through the school over the years, and not be surplused and reassigned to new schools.
Your analogy to business is poor. Your child is not a business. A poor customer is often lost by a business and not given service if they are too difficult. A business' job is not to conform to an IEP.
IEPs get read by teachers once we have a good night's sleep and things are under control. Resource Teachers may brief a new teacher and give them a heads up about specific students by name without showing the new teacher what the kid looks like. The information is used once the teacher knows the student's name.
I once had a class with most kids with 2 to 3 inch thick IEP files. I can assure you that they were not read for the first day of school. (I flew into the job with a suitcase and shipped my things afterwards, once we found a place for me to live.)
Incidently, files are not allowed to be read outside the school day, the cabinets are locked when the school secretary leaves. We might have 1/2 an hour in the school day to access them when we are not teaching, and there is still preparation for the classroom, even if it is just setting up art supplies, etc.
Your dreams are noble. Perhaps you would perfer the Japanese system. It introduces teachers to half a teaching load for the first 5 years as part of a full-time job. The rest of the time is spent developing lessons in cooperation with senior teachers that are tailored to the specific class of students. Perhaps you should advocate for changes in the school system, rather than suggesting that teachers are inadequate. They are only doing what is humanly possible in the circumstances that they find themselves.
I identify with the autistic kids, their stress and their difficulty adapting. But wouldn't it be wonderful , if they learned to work with people in the world, as responsible individuals advocating for their own needs. As parents you could teach them some greeting for a new teacher like: "Hello my name is Joe. I am on the autism spectrum. I am very nervous about this new school year. I have a difficult time adjusting to changes. Please bear with me and help me learn. I will try my best, and strive to tell you when I am having difficulties before I lose it and have a tantrum." What a gift you would be giving your child if you taught them to respond this way to new teachers, including those covering for their teacher when they are away. Incidently occasional supply teachers do not even know which children are identified and have no access to IEPs.
Good luck. The system is not a utopia.
The system is not a utopia
Hello,
While I understand what you are trying to say, I feel that unless you are a parent of an autistic child or special needs child, you have no idea how frightening the new school year can be. As a parent you are intrusting your special child with strangers that may or may not have a clue on how to teach them. Those new teachers have no idea what works and what doesn't. My son, Jake, has Asperger's like autsim, ADD, GAD, Phonological processing disorder, and some other minor disorders. Jake will start the 6th grade this year. One of the major changes we have to face this year is losing our much loved special intervention teacher. He knew how Jake "works". He knew what to do when Jake was having a bad day. He knew how to explain to his regular classroom teachers what was best to help Jake learn. He knew how to get him to do things Jake didn't want to do without having him get to worked up about it. It doesn't matter that I have spent the beginning of every year telling the new teachers repeatedly to send a note home if they needed to tell me something important. It doesn't matter if I explained over and over that it wasn't him being irresponsible, but that he has short term memory problems. None of that mattered the day they didn't send home a note telling me that school was dismissing at one and not three. None of that mattered on that day I didn't show up to pick up my son, who has General Anxiety Disorder and is terrified something is going to happen to me. None of that mattered when Jake stood outside the school crying for an half hour because I wasn't there to get him. None of that mattered that they were supposed to stay with my child until I picked him up. None of that mattered that they called my house and not my cell like,I had told them to do at least ten times, they didn't reach me. None of that mattered that teachers walked past my crying son and never stopped to ask him what was wrong. They went off on their Christmas break with no regard to my son or the fact that we had to deal with the after affects of their neglect. So please forgive me if I am not so sympathetic to the teachers in schools. We did our IEP in March and the new teacher is supposed to attend that IEP. That rarely happens. I feel that I have tried every year to inform the new teachers of Jake's problems. In fact I sometimes feel that I am bugging them about those problems too much. You suggest how wonderful it would be if autistic kids "learned to work with people in the world, as responsible individuals advocating for their own needs. My son Jake would love to learn how to work with people, unfortunately he doesn't have those kind of skills, but wait wasn't he supposed to learn some of that at school? As for that wonderful speech you wrote,"Hello my name is Joe. I am on the autism spectrum. I am very nervous about this new school year. I have a difficult time adjusting to changes. Please bear with me and help me learn. I will try my best, and strive to tell you when I am having difficulties before I lose it and have a tantrum.", Do you even have a clue? I take offense to the very word tantrum. When my Jake gets so upset that it appears he is having a "tantrum" then I know he is having a panic anxiety attack. I know that he doesn't know how to handle the situation and that is how he expresses his feelings. You have no idea what it does to a parent to see their child lose it. To know that nothing you do will make the situation better. To see your child hurting. To have your child tell you they are stupid, or an idiot. It hurts.A child has a tantrum when they are wilfully trying to get their own way. My son would never say anything like your little speech. You need to do a little more research about austim. I realize that teachers have a hard job to do and I appreciate them. I pray for them and I try to be an involved parent willing to help them in any way I can. I also know from experience that they don't always do their job. It would be great if my Jake and all the other kids in this world with disabilities were able to advocate for themselves. Because then me and other parents like me would not have to worry about who is taking care of our children. We would not have to worry who is influencing our children. We would not have to worry what will happen if and when we are not here to advocate for them. I would love for my son to have an aid with him all day long, but my school says that he can't have that. He has a intervention teacher and that is all they are required to provide. I hope in the future when you have to deal with the child or parents of a child with special needs you remember that you are dealing with someones life. You only have to deal with those special needs for one school year. We have to deal with them for the rest of our lives and all the problems that come with new teachers.
The School System Incident
In a town called Texarkansas, Texas, a superintendant said to the Texarkansas Telegraph (the town's newspaper) that he didn't know how big a need for Special Education Programs in his school was.
In other news, said during a Peer to Peer training at Longview High School: A student said in front of the class and Principal, "I would like for there to be more respect for those people who are in Special Education."
Imagine the changes that happen once the behavior of not respecting people who are in Special Education changes (!)