The Mania of Medication Management
Managing medications and being able to identify exactly what is positively or negatively impacting a persons behaviors and their over all health is extremely difficult for family members as well as medical professionals. Whether it's children with learning disabilities or an elderly parent it can gradually become overwhelming when medications are slowly added over a period of years. This is also true when using nutritional supplements and dietary interventions in a therapeutic capacity. So many parents like myself will eventually find themselves expanding their horizons when looking for options that will improve the quality of their child's life. Many of you are all too familiar with the phrase "been there done that"... and one day you wake up with bins full of medications and supplements and are really not sure what is doing what and if what you're giving is actually helping or hindering your efforts.
These are just a few of the common side effects that can occur from taking supplements or medications and increasing foods that weren't previously eaten.
1. Upset stomach or feeling nausea
2. Head aches
3. Agitation and restlessness
4. Increased anxiety
These side effects that are commonly listed on products many of us give our kiddos on a regular basis. It's too easy to introduce a product in the hopes that it will positively impact the areas of life we are targeting and forget the negative side effects can arise with them. I can't tell you how many times I as well as my friend Laurie with Feat North Texas hear from families whose children are experiencing extreme behaviors or health concerns and they are on anywhere from 5-10 different medications. At some point we all ask if the supplements, medications and dietary changes are really positively effecting our children. I am no different and Jacob is only on 5 medications, 2 of which are for allergy and thyroid. About six months ago I made the decision to reevaluate his supplements based on his current diet, eating and sleep habits along with how he was able to tolerate change and situations that were prone to increased anxiety. I began to gradually remove supplements that had been introduced years ago for very specific reasons. I decreased his magnesium and probiotics since bowel functioning had seemed to be regulated at this time. I did the same with the number on capsules he had been taking of his multivitamins and so on. Eventually we removed all supplements for about two months but we did ensure that his state of nutrition was supported adequately by his diet for basic nutritional concerns. Next, I began to look at his medications and felt that the most pressing concern was him being on edge or an increase in anxiety. I have worked closely with his physicians and was intimately aware of all aspects of his medications and which of them required a gradual reduction and which ones could be immediately discontinued. I decided to go forward with my efforts of getting him as close to functioning without pharmaceutical supports and found that with the removal of one medication he did seem more settled. After three months of gradual changes we have reintroduced a basic multivitamin that does have additional B vitamins, Omega-3 fish oils, vitamin D and a multi-mineral supplement.
It seems that we have found a good balance at this time and he is still sleeping great, having a balanced response to situations that had previously began to increase his anxiety and he is eating normal, healthy portions of food. If you have found yourself experiencing the mania that goes hand in hand with managing medications you too may want to consider revisiting why each supplement or medication was initially introduced. It's easy to miss or over look the obvious, especially if it has become part of your daily routine over many years. With all that being said, keep in mind it is VERY important to never just take a child off any product cold turkey especially medications prior to consulting with your physician and pharmacist! The last thing to consider is that some medications can absolutely cause nutrient depletion's. Seizure medications are just one class of meds that are known to lower some B vitamins. So, if you find yourself experiencing the mania of medication management the remaining weeks of Summer may just be the perfect opportunity for you to work with your child's doctor in reassessing their current plan. The Summer typically allows parents the flexibility needed to make accurate observations and the removal of constraints that school may pose. Whether you choose to make any changes at all, revisiting the function, positive attributes and possible side effects of the products your child or family member is on is just one more way to be sure you are doing all you can to support your entire families emotional and physical well being. If you have questions about possible nutrient depletion's or the side effects of medications and supplements send me a note because chances are you're not the only one. Over the next few weeks we can review information pertaining to specific products that hopefully will provide others with valuable supports and product information.
Best Wishes,
Mika
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Comments
Great recommendations!
Thanks, Mika, for such a helpful blog entry with great advice. It seems very logical to re-evaluate supplements and medications in an ongoing fashion, but we get so busy with keeping up with the day-to-day stuff, that such a re-eval often gets put on my back burner. (I have been systematically changing a few of Ethan's supplements this summer, but hadn't considered a huge overhaul.)
I have a question for you: When you were gradually withdrawing supplements and medications to get to Zero, about how much time did you allow between each withdrawl? I know it is important to watch really closely for increased behaviors/symptoms and the opposite, too...so I wondered how much time in between you used.
Thanks in advance for further insight!
Appreciatively,
~Leigh Attaway Wilcox
Mom to 7yo Ethan
Time Frame of Needed When Changing Supplements and Medications
Leigh,
Thank for your kind words :-)
The amount of time you should give between making changes to your Childs plan is something that must be individualized based on the goals you are targeting. With supplements would be first identifying the function for each product you are giving and what traits, physical or behavioral prompted the use of the product. If magnesium was initially given to promote bowel functioning but your Childs food choices have changed, looking at their fiber content and fluid intake would be the first step. Supplements and medications have a life span or time frame that they are active within the body. It can range from 8 hours to days and weeks depending on the product.
So, with all that being said what did I do..... Well I removed the singular supplements one at a time in 3-5 day intervals. I left the multivitamin for last as I always look at multivitamins as the foundation to any supplement plan. It is amazing how many people will plug in single supplements and herbs when the overall health and regular food choices are clearly inadequate to the persons nutritional needs. As for the medications, of the 5 he was taking as mentioned before we only needed to remove the adderall. This was decided based on what we wanted to accomplish. Jacob's anxiety had seemed to increase as well as his how reactive he was to conflict or disappointment when things did not work out as he wished.
In this process I made a point to inform his teacher that changes had been made but, I did not say what changes or what she was to expect. This was my way of collecting unbiased feedback. I am happy to report that at home and at school we have seem very positive changes. It has come with the trade off of a decrease in the amount of school work he is getting done but it is well worth it.
I hope this helps you and others in the autismspot community!
We will explore further the functions, applications and possible outcomes that are expected with supplements and various medications in our upcoming blogs :-)
Thank you for all you do for children with special needs and I look forward to your participation in the discussion topics to come!
Best Wishes,
Mika