I've been trying to find information on getting hospital accommodations. I mean for someone like me, I fear hospitals to an extreme, so much that I would probably rather die than set foot inside of one. It becomes a bigger challenge for my mom because she really doesn't understand me that well. My dad is handicapped because of tendinitis and doesn't like being in the hospital with me either.
I want to have accommodations so that they understand that I have trouble with expressing myself as well as emotional wise too. I am unable to explain things in highly anxious situations and it becomes a big issue. I get panicky and at times I meltdown under pressure and frustration. I just don't enjoy being poked and prodded at and then having them do other things I can't even prepare myself for. I have even been known to walk out of the hospital due to fear because I just didn't want to be there.
I have trouble dealing with what is to come. I hate change and anything that is unexpected. What is even more of a challenge is having the mind of an eleven year old girl. It is challenging because people see me as a 22 year old and don't realize how I function. I just want to be understood and treated as a child so I don't end up going into a state of panic and distress.
Another thing is being out in a waiting room with high levels of sensory input and inability to filter background noises... this is another issue and not to mention people throwing up... it would be nice if I could be in a room away from this where I wasn't around so many people having to wait.
The problem I face is that I don't 'look' disabled and you know what? If I don't 'look' disabled then they hardly even take me seriously. I hate it and half the time I give up the chance to go to a hospital... but something is going to happen where I will need to and then they will have a problem because with my disabilities, there will be a serious challenge.
It would be hard considering one of those medic alert bracelets or even a card because these are special needs. There are things that need to be planned out and understood so I don't go into meltdown mode.
- redxfantasy's blog
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