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Everyone trying to make a buck off autism

Submitted by angela on Thu, 05/13/2010 - 10:12.

Is it just me or is anyone else ticked at the "Snake Oil" salesmen trying to cash in on the autism crises?

Last year I attended a support group for parents of children with Asperger's and it turned out to be a marketing ploy for a supplement that "Made non verbal autisic child speak and advance to the point of beind indistinguishable from neurotypical children". At 100 dollars a month if you don't see immediate results than double the dosage!

I am interested in hearing from parents who have found something that they believe works but not if they are profitting from this.

I am not real happy about MAV's post promoting some upcomming drug aimed at autism. I wonder if this was the sentiment of this site's creator's? They should be advertising and paying rather than posting a "blog".

I just had to get that off my chest.....

Comments

good point...and happen to agree

Angela -

We exercise a lot of restraint and try not to overstep the bounds of letting the community drive good content on the site and preventing complete/direct marketing attempts. Sometimes we have groups contact us and ask about either advertising or to approve a post before it goes up.

In this scenario.....none of the above occurred and the "news" blast was nothing more than a press release. Not going to fly here. It's gone.

Thanks for speaking up and being actively involved.......keep it up.

Cheers
Kent

Crap in a bottle

Girl I feel your pain. We just spent a mortgage payment on all types of supplements, tests, etc from a "new" doc claiming that it would take away some of the Rock's stimming and spaciness. Did it work? Of course not. It is very disheartening and makes you think there ARE bad people in the world waiting to profit on parents desparation. We'll never know.....

that would be "Expensive

that would be "Expensive Crap in a Bottle".

So you think we could get rich selling bottles with that as it's content name?

Nice post, Eventually,

Nice post, Eventually, because of the therapuetic benefits horse riding was having on my autism, my parents got more *real* horses to feed my ever growing horse interests and obsessions. My autistic horse obsessions got so out-of-hand, that when my elementary school teachers tried to assign me seo "The Parthenon" as a subject to write about so I would NOT be able skynews to write yet another paper about horses, I discovered there were horses in the art frescoes around The Parthenon, and wrote about how beautiful they were !!
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I think that what you feel

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I agree!

I am very skeptical when it comes to supplements and certain treatments. I had a friend where we lived out of state who went to a DAN! doctor. I'm not saying that is typical of DAN! doctors, but this particular one has written many books that are highly touted in the ASD world. She started the regiment of lab tests, etc. and supplements. At every visit, the doctor would state that the new round of expensive tests showed improvement in certain areas, and that the child would eventually have no detectable autism symptoms to the untrained eye. While the physical symptoms improved over time, his behavior and communication really did not. She was happy that he had somewhat better digestion and possibly reduced allergy symptoms, but she was really out to help his autism symptoms.

Enter her pediatrician, who did not really agree with the protocol, especially sending off tests to specific labs that showed dramatically different results than the same tests run at standard labs. She ended up asking the mom to please go get genetic testing done. The mom finally agreed to do so, and found that her son was affected by one of the autism genes. No matter what she does in the biomedical world, it will not change the fact that her child will have autism. She may be able to help him with therapy, and maybe to some extent, biomedical interventions. But she now realizes that the promises made to her will not come true no matter how strictly she follows the protocol.

She now treats her son with any supplements that seem to help in HER opinion. When she refused to continue monitoring his body fluids via the specialty lab and go based on her own observation, the DAN! doctor refused to see her anymore because she would not strictly follow the protocol.

Ironically, the last lab results she received with the narrative had her child's name on it, but twice used a different name in the narrative writeup. That is very telling.

Lesson to us parents: Go with your gut feeling and what you see with your own eyes. Don't be swayed by what is on paper, especially if it is not proven science. That is not to say that people don't have other experiences. I use supplements for my child, but if I do not see improvement in whatever we are trying to help, we discontinue.

Just my 2 cents.